Food Allergy Counseling

Food Allergy Counseling
Sloane Miller, MFA, MSW, LMSW, Psychotherapist; Specialist in Food Allergy Management, Speaking At Mylan Specialty / EpiPen Event (© Noel Malcolm 2013)

Monday, August 27, 2012

KFA, 2012 Strides for Safe Kids Mall Walk and Expo

This will be my first Kids With Food Allergies Foundation event. I'm so excited! I’ll be in attendance, selling and signing Allergic Girl books and meeting all of you. Come, join us!

From the KFA site:

LOCATION:  Plymouth Meeting Mall  Directions
Registration at 9:00 a.m. (Save time and pre-register!)
Walk and Fundraiser from 10:00 a.m. through 1:00 p.m.
• Interactive performance by "Food Allergies Rock" musician Kyle Dine
• Award-Winning Family-Friendly Magic of Kyle and Kelly
• Allergy-Friendly Exhibits from Elmwood Park Zoo
• Activities for Children
• Allergy-Friendly Businesses
• Prizes for Fundraising
• And More!

Friday, August 24, 2012

Auvi-Q, FDA Approved

*UPDATE January 28, 2013*:  Auvi-Q Launches in the US today. See the press release from Sanofi US here.

*UPDATE OCTOBER 26, 2012*: "...Auvi-Q will be distributed to retail pharmacies in the first quarter of 2013. Sanofi has been working hard the past two months to build ample supply of the device to meet the anticipated demand for the product and to help ensure nationwide distribution. As you may or may not be aware, epinephrine is a drug that does not have a particularly long shelf-life, so manufacturing is occurring following FDA approval to help ensure that when a patient or caregiver does fill a prescription for Auvi-Q, he or she receives a product with an adequate expiration date."*

A few years back I reported on and interviewed the founders of the newest delivery system for epinephrine. That system, that concept, was purchased by Sanofi US and now that system has FDA approval and an official name. Called Auvi-Q (pronounced Ah-Vee-Cue), according to the Sanofi press release:

  • Auvi-Q is the first and only compact epinephrine auto-injector with audio and visual cues to help guide patients and caregivers step-by-step through the injection process during an allergic reaction.
  • Auvi-Q is the size and shape of a credit card and the thickness of a smart phone and fits comfortably in a pocket or small purse.
  • In addition, Auvi-Q has a retractable needle mechanism to help prevent accidental needle sticks post-injection.

As this product was developed by the Edwards twins, men who have anaphylaxis (more about them here), they wanted something they could carry and they came up with this novel shape, square-like, easier for a man-pocket. (Have a look at the video that shows the demo, with a tween boy.) Super smart. So often boys, young adult men, and even fully adult men don’t carry their epinephrine auto-injector. As we all know, all it takes is one tiny morsel for a possibly severe reaction that will be swift (and possibly fatal). Epinephrine is the first-line treatment for life-threatening allergic reactions (anaphylaxis) that is recommended by the food allergy guidelines developed by the National Institute of Allergy and Infectious Diseases. Once prescribed, an auto-injector must be carried at all times.

Perhaps this new Auvi-Q shape and delivery system would work for your family. Now that the product has approval, it will roll out sometime after November 15, 2012 nationally. When purchased, Auvi-Q comes with two devices and trainer. They also have two sizes 0.3 mg (over 66 pounds) and 0.15 (for less than 66 pounds).

Check out the video and the Auvi-Q site for more information and consult your board certified allergist about your needs.

Monday, August 20, 2012

Food Allergy Center, Mass Gen, Videos

Check out my colleague, Wayne Shreffler, MD, PhD, division chief of Pediatric Allergy & Immunology at MassGeneral Hospital for Children and director of the Food Allergy Center at Massachusetts General Hospital, as he explains the differences between food challenges, which are established methods of care, and oral immunotherapy, which is still in research.

Watch the video here and then watch several of the Food Allergy Center at Massachusetts General Hospital's other informative videos.

Great job, Food Allergy Center team!

Friday, August 17, 2012

EpiPen4Schools, Mylan

August 14, 2012 Mylan Specialty announced the EpiPen4Schools program [Disclosure: I have a relationship with Mylan Specialty]. It’s a sponsored program whereby individual schools throughout the United States can apply to receive four [4] free EpiPens®.

Here is the PDF of the free EpiPen application. Additional EpiPens® can be purchased for a discount if a school qualifies.

From the Mylan Specialty press release: “This effort offers four free EpiPen® or EpiPen Jr® (epinephrine) Auto-Injectors upon qualification, which includes having a valid prescription, to public and private kindergarten, elementary, middle and high schools in the U.S. The products will be available in the form of two EpiPen 2-Pak® cartons, two EpiPen Jr 2-Pak® cartons or one 2-Pak of each kind…The EpiPen4Schools program is designed to help schools have improved access to epinephrine in the event a person experiences an anaphylactic reaction at school. This access is important because epinephrine is the only first-line treatment for life-threatening allergic reactions (anaphylaxis), which can occur quickly and without warning….”

For complete details, visit Tell your school nurse or principal and have them apply directly.

*It is essential that you have a personal autoinjector of epinephrine for you or your child’s needs. See your board certified allergist for a personal prescription. You can find allergists through AAAAI or ACAAI or your board certified general practitioner.*

Tuesday, August 14, 2012

Sixth Anniversary, Allergic Girl Blog

Wow. Six years. I’ve been writing this blog since August 9, 2006. And within the past six years, I created a coaching practice, wrote the first lifestyle guide for adults (Allergic Girl), continue to tour the country speaking at professional conferences, work with the government, non-profits and healthcare, food and hospitality service, all to serve one mission: connecting with and supporting the food allergic community. 

I’m truly honored to be able to do this work and it all started here with this humble blog. And you, cherished readers and friends.

So, it’s your anniversary too. And the thanks go all to you. For you readership, love and support. Thank you.

(I’m totally verklempt, now.)