Life Disrupted by Laurie Edwards

From my review on

“There are several new voices about living with chronic illness: Jenni's Chronic Babe, Kris's Crazy Sexy Cancer, and Laurie Edwards author of Life Disrupted: Getting Real about Chronic Illness in your Twenties and Thirties...Edwards has written a roadmap to what her life has been like with serious ailments that had no clear diagnosis until she was finally diagnosed with Primary ciliary dyskinesia or PCD in 2003 along with celiac disease.

Her book, Life Disrupted: Getting Real about Chronic Illness in your Twenties and Thirties is organized in three vital sections: medical life, public life and personal life. Edwards tackles each of these sections with compassion, courage, humor and a lifetime of real world experience. She's learned solid lessons about being the best advocate for your health; not letting illness and disease define you; and how "[b]eing well means being able to find a place for chronic illness within the context of our relationships and our professional lives, not at the expense of them."

You can read more of my review on


The more lit the better for us younger ones coping with chronic illness and disabilities. I've spent the last four years interviewing 20 and 30-somethings around the U.S. who are coping with cancer (Everything Changes: The Insider's Guide To Cancer In Your 20's and 30's.) Despite our different diseases, there is much to learn from each other in how to manage true quarter-life crisis.
zia said…
In Narcolepsy there are a lot of Quarter-life crises as well, as diagnoses get earlier in life and yet acceptance in the medical community seems to linger, ESPECIALLY for women. Many of us find we have food triggers to our symptoms and yet we strive for acceptance among our peers. Still many of us have to undergo psycholgical evalutation to be taken seriously at all. When I was 22 I was told I had been througn more medically to evaluate my sleep disorder than some had been through at age 70. I believe a serious health care revolution needs to occur before the science catches up with the patient care.

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