At the Thought Leader’s Program, June 14, 2009 at the Celiac Disease Center at Columbia University, the center's preeminent leaders on celiac disease discussed the following topics (the event is up on Youtube.com shortly:http://www.youtube.com/CeliacDiseaseCenter.):
10:00 am, Peter Green, MD: Introduction to the Center and recent new information on celiac disease
10:30 am, Phil Kazlow, MD: Update in pediatric celiac disease
11:00 am, Suzanne Lewis, MD: Evaluation of poorly responsive patients
11:30 pm, Suzanne Simpson, RD: Why see an expert nutritionist for evaluation of celiac disease
12:00 Buffet Lunch Served (gluten-free, of course!)
12:30 pm, Christina Tennyson, MD: Nutrient and vitamin replacement
What I found of particular interest was the discussion of both "Evaluation of poorly responsive patients" by Dr. Lewis and Ms. Simpson's discussion about “Why you should see an expert nutritionist for evaluation of celiac disease.”
Sound familiar? Folks at the FAAN conference also talked about the vital importance of diet for the food allergic community.
According to Dr. Suzanne Lewis of Celiac Disease Center at Columbia University, thirty percent of people on a gluten-free diet fail to see improvement. Why? It’s mainly due to noncompliance.
Why do gluten-free folks not follow the diet? Because it’s difficult and they don’t know what to eat exactly.
As Dr. Peter Green stated: the gluten-free diet is what to avoid as well as what to eat. Many become educated on what to avoid but how many know what to add back in?
For those with diagnosed celiac disease, I urge you to make an appointment with a registered dietitian who understands celiac disease.
Some helpful sites.
www.eatrightny.org (NY ADA Chapter)